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© 1995 Oxford University Press

research-article

Self-reported Functioning and Well-being in Patients with Parkinson's Disease: Comparison of the Short-form Health Survey (SF-36) and the Parkinson's Disease Questionnaire (PDQ-39)

C. JENKINSON1, V. PETO1, R. FITZPATRICK2, R. GREENHALL3 and N. HYMAN3

1Health Services Research Unit
2Department of Public Health and Primary Care, University of Oxford
3Department of Neurology, Radcliffe Infirmary Oxford OX2 6HE

The purpose of this paper was to document the impact of Parkinson's disease (PD) upon patients using both a generic health status measure (the Short-form 36 health survey questionnaire, SF-36) and a disease-specific measure (the 39-item Parkinson's Disease Questionnaire, PDQ-39). Comparing the results of the SF-36 in this population with a similar aged group selected randomly from two general practices it was evident that the disease has considerable impact on general levels of functioning and well-being. Furthermore, other areas not contained on the SF-36 were found to be relevant to PD patients. It is suggested that the disease-specific measure will be of value, ideally alongside a generic measure, in studies aimed at determining the impact of a treatment régimen upon PD patients, or to monitor the long-term progress of cohorts of patients with PD. The paper highlights the need for careful consideration of measures for evaluation.

Received April 29, 1995;
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